P1-609: ACTNOW: A DEMENTIA RESEARCH ONLINE RECRUITMENT REGISTRY SITE
نویسندگان
چکیده
منابع مشابه
The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases
BACKGROUND Rare diseases pose many research challenges specific to their scarcity. Advances in potential therapies have made it more important than ever to be able to adequately identify not only patients with particular genotypes (via patient registries) but also the medical professionals who provide care for them at particular specialist centres of expertise and who may be competent to partic...
متن کاملEvaluation of participant recruitment methods to a rare disease online registry.
Internet communication advances provide new opportunities to assemble individuals with rare diseases to online patient registries from wide geographic areas for research. However, there is little published information on the efficacy of different recruitment methods. Here we describe recruitment patterns and the characteristics of individuals with the self-identified autosomal dominant genetic ...
متن کاملneurometabolic registry site in iran
how to cite this article: ahmadabadi f. neurometabolic registry site in iran. iran j child neurol autumn 2012; 6:4 (suppl. 1): 21. pls see pdf.
متن کاملneurometabolic registry site in iran (leukodystrophies)
how to cite this article: ahmadabadi f. neurometabolic registry site in iran (leukodystrophies). iran j child neurol. autumn 2014;8;4(suppl.1):22. pls see pdf.
متن کاملMild senile dementia of Alzheimer type: research diagnostic criteria, recruitment, and description of a study population.
Clinical investigations of senile dementia of the Alzheimer type require establishment of explicit clinical diagnostic criteria before histological confirmation is possible. Criteria for selection of mildly impaired subjects with senile dementia of Alzheimer type, free of other major disease, are proposed. Problems of recruitment of this select population for a longitudinal study are discussed....
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ژورنال
عنوان ژورنال: Alzheimer's & Dementia
سال: 2019
ISSN: 1552-5260
DOI: 10.1016/j.jalz.2019.06.1214